As my mother implied in the previous entry, we did receive the results of Edda’s blood test on Monday and it is with a heavy heart that I report that she has Rett Syndrome.
Edda is very happy and healthy and does not seem to be in any physical or mental distress at this time and for that, I am grateful because I know these things are not a given for children with Rett. Actually, in the grand scheme of things, I still consider myself a fortunate person. I have loving family and friends, I have a roof over my head, plenty of food to eat and access to good schools for my kids and doctors for anyone who gets ill. It’s a good place to be. As for having Edda, she is 1 in 10,000 – she’s a pretty unique girl and if her soul had to end up anywhere in the world, it’s just fine that she landed into our little family. We’ll do our best to care for her, just like we all do our best to take care of each other each day.
We will see day by day what the future holds.
2 thoughts on “Here we go…”
If you need anything let me know.
I tried calling last night, but somehow the Vonage number hooked me up with someone else. Strange.
Anyways, it will be great to come and see you and Jeremy and the kids in August!
After seeing your message on my blog, I headed over to yours…Your little one has a huge support system! I wish the best for everything. Our daughters are Angels and we have been chosen to raise them on Earth. If you’d like to talk just email me…