OK, I had this great week of vacation and I disconnected and thought about nothing and then I headed…into a week of chaos. The night before I headed home from Vermont, Jeremy told me that Edda was going into one of her cluster seizures. This one was a little more confusing because she had some breakthrough seizures during the benzo bridge that we regularly administer. Because of this, she’s been on the bridge longer than usual – now 5 days and has missed many days of her day program. We’ve been back and forth with CHOP and her new primary care doctor who wanted to admit her to the local hospital to do imaging for..you know, a brain tumor. But we didn’t want to do that and neither did CHOP. And we didn’t do it, but we thought about doing it for about six hours which stressed me out (how the hell am I going to fit a 24-36 hour admission into this week!). But now I’m past it.
Also on the way home, my parents called and told me that my mom had broken her shoulder by tripping over a baby gate at a friends’ house and it’s her dominant arm. She broke it on Monday and didn’t tell me until Friday which I guess is somewhat OK because I had my vacation oblivious to this situation because I’m sad now and I would have been sad during the vacation as well. Also, they have no air conditioning at their house because…they used to not need it, but Portland is headed into three days of a heat wave and their solution is to eat watermelon.
Edda completely zonked out on benzos for 5 days…poor girl.

Also, Vince is in town – after a great DC conference while I was in Vermont. He was able to extend his trip an extra week to see all of us. He hasn’t been home in years! We’ve seen him other places and often on Facetime. It’s lovely to have him to ourselves. The house objects have moved around and he notes it and he also remembered that we used to bolt down charging cords in the common areas to prevent teenage theft and now we don’t do that anymore because we don’t steal our own cords, but it did cross Vince’s mind to take one of those unbolted down cords to his room and then he was like…I am the problem. It’s great to have him in town, he’s seeing friends and sleeping a bunch. I don’t see much of him, but we had to cede an entire bedroom to him (his old room which is my office now, so I moved my office into Edda’s room so I can have her zonked out right next to me all day)

I also headed back into a weekend filled with church stuff, there is a new minister in town (I like her! Thank goodness!) which involved a three-hour Saturday tour/lunch of the property and Sunday service with a welcome potluck for 75. I’m not doing any of the logistics for this, but I’m there with a smile and some baked goods.

Ning Brian and kids showed up on Sunday night, we gave them the primary bedroom with the king bed and a blow up queen mattress and a cot and a tremendous amount of room. We moved out of this room and into Jeremy’s office with a queen sized bed. When they first heard they were getting the primary room, they were like – we can sleep on the couch and I was like – absolutely no couch sleeping! No one is sleeping on a couch. We are all too old and too tired for that shit. They are the easiest guests ever, out of the house at 8-9 am and back home at like 9 pm! And they walk the dog too! (Everyone wants to walk the dog.)

And then on Sunday night I went to see Weird Al Yankovic with Lexy which was a great, fun concert. The tickets were bought months ago and would I have done this during this crazy time? No not really, but I had a nice time and I got home at midnight and couldn’t sleep for an hour at least in Jeremy’s office. Lol. I learned about “chimping”.

Life is lifing along. I’m having a good time.

Sometimes I think Elka would do better in a household with little kids.



























