I don’t take off my watch to go to sleep. I switch beds so often during the night, I never know where I’m going to end up in the morning, so my watch is set to go off at 5:15 every morning and it’s firmly attached to a body part that moves with me.

Before I started work, Edda would wake at 4 or 5:30 in the morning and I would coax her back to sleep with much effort on my part and she would sleep until 6:30. But now I’m up at 5:15 and have no time for her as I have to shower, get dressed, make my lunch and get out the door by 5:45 am.

We all had minor coughs on Thursday. Edda did not sleep well. She was in the infuriating state of almost asleep for most of the night and was wide awake at 4 am.

I remember last year, getting Edda’s diagnosis, all the crazy emotions were amplified by the fact that none of us were getting any sleep. Edda would wake up at 1 am and be up for 3 hours. This is much, much better than it was a year ago, and for that I’m thankful.

My wristwatch and a hot dog on a fork.


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