Backing off from a busy schedule.

As one of our last big road trips before turkey day (only 3 weeks away!), the four of us ventured to New Jersey to visit my friend Ingrid (who works so hard fundraising to find a cure for Rett Syndrome and runs Girl Power 2 Cure and helps to run RSRT) and to meet her family, in particular, her daughter Sarah who also has Rett Syndrome.


Edda got to go to Sarah’s school and was her “share” at show-and-tell. It was really sweet and touching.


2 thoughts on “Backing off from a busy schedule.”

  1. HOW FUN!!! Sarah ans Edda are two girls I have been following and loving since the beginning of our Rett Syndrome journey – how wonderful to see them both together!!

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