When Edda was first diagnosed with Rett Syndrome, I had a few pals tell me that it just wasn’t fair and that I didn’t deserve to have a child with such a serious disability. I don’t often think of it in that way; for me, I’ve always understood that random mutations in DNA happen all the time and sometimes they result in someone who is stronger/swifter/smarter and sometimes it just doesn’t work out that well at all. So I always figured that Edda having Rett Syndrome is just the randomness of the universe.
But it doesn’t mean that I don’t try to find a more spiritual meaning in raising a child like Edda. Of course, Edda and her disability have taught me to become more understanding and patient. But my secret belief of why Edda is the way she is, is that somehow, somewhere I’m suppose to meet a person that will change my life. How will the person change my life? In what way? I dunno. That is the big mystery to me. I’ve met so many wonderful people via Edda and I continue to do so everyday.
On Saturday night, I met a group of local mothers who each have a daughter with Rett. We ditched the husbands and the kids, met up at a local grill and had a few maragritas (I got carded! Woo hoo, Asian genes at work!) and talked and talked and there was still more left to say. It was really, really wonderful.