I love my Rett Syndrome family. Although I could do without Edda’s disability, I do like that I have a name for it and that I’ve connected with families all around the world who share similar struggles. Today we participated in Blue Sky Girl event – which was an awareness event to let people know about Rett Syndrome. We bought balloons in blue and yellow – blue for the sky and yellow for the sun.
All around the world, in designated spots with staircases, we were all suppose to climb up the stairs to show what girls with Rett can do. Here we are at the bottom of the stairs:
And here we all are at the top!
