I’m in a blue mood – I think mostly because Edda had the pair of seizures on Sunday and we’ve been back and forth with CHOP on how to manage it. And how to manage it was, in essence, to reboot her brain for three days. We’ve done this before when she’s needed the feeding tube because of her swollen tongue, but we’ve not done this at home when she’s not bitten her tongue. So on Monday and Tuesday, she was home and groggy from the benzos, sleeping on and off and just a shadow of her normal self. It’s both kind of “normal” as both of us have worked, laughed and taken care of each other, but it’s also sad for me that Edda’s brain works so poorly and she suffers from all this crap.
Jeremy switched our phones from T-mobile to Google Fi over the weekend for our phones. We’ve been on a grandfathered plan for more than a decade, but T-mobile is getting rid of grandfathered plans and so Jeremy switched us. We really just want a plan that is seperate from the purchase of a phone and no one wants you to do that anymore, I guess. I don’t need a new phone every two years. Now I really like to skip like 4-5 generations.
The world is an entire shitshow, I’m trying to not let it get me down, though it’s a hard thing to do.
Edda’s health is of course going to affect your mood, and I’m so sorry you are all dealing with this. Even if it’s something you’ve had experience with before, it’s not fun or easy. Sending you love.
We recently had to switch over from our grandfathered cell plan and I was super bitter about it. Like you, I don’t want to have my cellular bill tied to my device, or to be forced to shell out $XXXX every couple of years for the latest thing. Blech.