Month: February 2006

Therapy Appointment today

We went to the therapy place today. It was much better this time than last time, even though Edda did sleep through about 20 minutes of it. Ok, here is our assignment:

  • Get a mirror, put shaving cream on the mirror and encourage her to play with that.
  • Make faces with her in the mirror.
  • Get beans, dried pasta, sand and have her play with that. Hide things in the beans and have her find them.
  • Get some soft balls, put them in a bin, take them out of a bin.
  • For communication, make a picture book of things that she needs, food items, toys she likes. Before you get the item, open the book and point to the picture.
  • To stimulate her nerves, “brush” her arms, hands, legs, feet and back with a soft brush every 2 hours.
  • Also after the brushing, do joint stimulation.

We also got some sign language videos. We’ll see how it goes.

Well….

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After a few grumpy blog entries, I wanted this to be a happy, happy one. Mainly to let my parents know that we are still generally happy most of the time. See? In the picture? We’re all happy.

Good news from the medical front, genetic tests were all OK, no apparent DNA screw-up. We have a tentative diagnosis of hypotonia cerebral palsy which basically translates into low-muscle-tone mentally-retarded kid. So, not much information than that, basically, they can’t name it something, so this is what they are calling it.

Vince liked school today, they celebrated Chinese New Year and since it was so stressful for us this weekend, I didn’t have a chance to buy him a super cool Chinese outfit, so he went to school in his uniform and everyone else was all spiffed up. But since they gave out goody bags, Vince basically had milk and candy for lunch. Boy was he on a sugar high today.

We are still planning on coming back in late March, I think we are going to go to the Children’s Hospital in NYC affilitated with Columbia University as Bob and Katherine have an apartment in the city and also it will be the most viable one to go to frequently if necessary from where Jeremy would presumably work in NY.

Good night!