I went to Edda’s school today for a parent orientation. Stuff like what to bring on the first day of school, who to call to get status on a bus route, snack fees, etc. No big deal. I think I won’t have time to do much more of this soon and I am generally more patient than Jeremy about these things, so I went for the hour-long talk. There were 5 other parents there – dragged in during lunch time on Monday and we all sat there dutifully with pens poised over Xeroxed sheets ready to fill out details of our child’s life.
It has been a while since I’ve been around a group of people with special-needs kids. Actually, it has been a long time since I’ve been around a group of parents at all. I get a little tense and overwrought in a group where the focus is primarily the kids. I don’t know why, I just do.
Of course – most of the kids in Edda’s school are autistic – no surprise there. The after-meeting conversations head towards GFCF – soy free diets (no wheat/no dairy/no soy for the uninitiated), biomedical interventions (mega Vitamin A doses and metal chelation to leech out heavy metals) and various benefits of ABA, etc. One mom had even purchased a hyperbaric chamber (!) for use in their home and said that it has worked wonders for her kid.
Am I doing enough for Edda? My expectations remain high for her – we’ve gotten her into the “right” school and have good private therapists and we are doing some things at home, she’s having an active and well rounded life with family and friends. But I haven’t put her on a restricted diet, I haven’t done 40 hours/week of ABA, I haven’t purchase my own pressurized oxygen chamber.