Rebecca asked in the previous post if Edda’s getting any services for the summer. Edda is qualified for ESY – extended school year, but it’s not extended by much. It’s from July 8th to August 1st from 9 am – noon. Other than that, Edda’s going to PT and OT once a week. We are still struggling to find an SLT that we like, but we can barely find anyone who is even willing to take Edda on, let alone find someone superfantastic.
On a fundraising note, I think I have an appointment with Sen. Mikulski’s (MD) office next Wednesday at 11 to talk about the $500,000 Rett Syndrome earmark. I don’t have an actual appointment with the senator (which I think would have freaked me out to no end), but I think I have one with the legislative health aide, which is better than I expected. I sprinkle the word “think” throughout my last sentence because the legislative aide emailed me and said “Wed. at 11?” and I replied “Great, how do I find your office?” and I’ve gotten no answer and that was 3 days ago. I wonder if I’m going to bring Edda. It’s smack dab in the middle of the work day, but what the heck, she’s up for an adventure I guess. What am I getting myself into? Apparently, I’m heading to Capitol Hill.