Summer plans.

Rebecca asked in the previous post if Edda’s getting any services for the summer. Edda is qualified for ESY – extended school year, but it’s not extended by much. It’s from July 8th to August 1st from 9 am – noon. Other than that, Edda’s going to PT and OT once a week. We are still struggling to find an SLT that we like, but we can barely find anyone who is even willing to take Edda on, let alone find someone superfantastic.

On a fundraising note, I think I have an appointment with Sen. Mikulski’s (MD) office next Wednesday at 11 to talk about the $500,000 Rett Syndrome earmark. I don’t have an actual appointment with the senator (which I think would have freaked me out to no end), but I think I have one with the legislative health aide, which is better than I expected. I sprinkle the word “think” throughout my last sentence because the legislative aide emailed me and said “Wed. at 11?” and I replied “Great, how do I find your office?” and I’ve gotten no answer and that was 3 days ago. I wonder if I’m going to bring Edda. It’s smack dab in the middle of the work day, but what the heck, she’s up for an adventure I guess. What am I getting myself into? Apparently, I’m heading to Capitol Hill.

4 thoughts on “Summer plans.”

  1. You ROCK! Edda will love it, or at least they will love her.
    Your Extended years kicks our butts. Ours includes 3 (yes 3) 30 minute session ALL SUMMER….that is one per month. Call me crazy but that is the worst extend year ever!

  2. That is so cool. I am really proud of you for doing something so far out of your comfort zone. Talk about great moms!

  3. Your extended year is better than ours…Caitlyn will go July 7-August 1 for 1 1/2 hours a day…I’d give anything to double that to 3 hours!! Lucky you!

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