Mayo beach.

We went to the annual Maryland gathering of Rett Syndrome families. This was our first time attending, last year, we had just moved and didn’t get in touch with the local families until too late.

Beautiful day to fly a kite.

DSC_0037

Edda had a great time.

DSC_0162

So did Vince.

DSC_0199

Edda’s mutation, 806delG, is quite unusual. But we met another little girl who has the same mutation and we had a nice time chatting with her family.

DSC_0192

Eleven families showed up, we all got together for a group photo.

DSC_0216

DSC_0230

3 thoughts on “Mayo beach.”

  1. It is very good to meet other families with Rett’s girls. All those girls are very cute. Hope research will find the way to help them.

  2. HOW FUN! We are planning on going to the Michigan picnic next weekend – we are on the indiana/ohio/michigan boarder so we join in whenever we can with wahtever state we can 🙂

Leave a Reply