The conference was fine, it’s nice to see the familiar folks I’ve gotten to know over the past 3 years since Edda’s diagnosis. I was really hoping this year to see a video of someone using an eye-gaze system successfully, most optimistically trying to spell out words or else stringing some words together, however, I was really disappointed that this was not the case. I don’t know if I want to go next year, I’ve seen a lot of the sessions and presenters already and I get so emotional and teary-eyed at any extended period of time where I have to focus on how much Edda has lost because of Rett Syndrome. It wears me out. I know, we try and have fun around here, but sometimes it just sucks. I feel so differently at the conferences each year, the first year was overwhelming, the 2nd year was exciting and inspiring and the this one was filled mainly a sense of grief and loss.
I left the conference early Saturday morning to meet with my friend Vickey, who lives in Leesburg and she introduced me to Guitar Hero which I have to say is the most amazing video game ever. I suck at video games, I have never had the urge to play any “action” video game, but I’m not too shabby at Guitar Hero. We had the whole band – including vocals. I could have played for hours.
For about 45 mintues this weekend, I was about to go out an buy a whole Wii system and the World Tour package just so I could keep playing it at home. I even justified it by saying to myself that maybe Edda’ll love it, it’ll be like therapy, but better!