Sorry to be such a Debbie Downer in the last post. It has been somewhat of an emotional struggle since the beginning of the year. Our newest au pair, who started in January, decided that our house is not the place for her, so our child care situation has been thrown into a tizzy once she leaves the house this week. We try to provide a nice working environment, but somehow it did not work out this time.
We have also not really resolved Edda’s low platelet issues – the hematologist suspected that Trileptal was the culprit, but the neurologist indicated that Trileptal was specifically designed to reduce, if not, eliminate the blood count side effects of the older types of these drugs. So the neuro does not think the platelets is due to the meds and actually, the blood work supports the neuro because it seems to show Edda is metabolizing the drug just fine. Anyways, we still are going to do a fast ramp down on the Trileptal, see if we lose seizure control (which I am always curious about) and redo the blood work to see if the platelet level goes back to normal. In the background of all this, one wonders if a low platelet level is something to worry about or if it is something that we shouldn’t really even worry about.
Of course, as soon as our childcare becomes non-existent, Jeremy starts his traveling for work again. He worked from home last week to make Edda’s IEP and neurologist appointment and I listened to him make 4 hour long conference calls in a row. This upcoming trip for Jeremy is so tightly packed (scheduled down to the hour) that he is really spending a lot of time on logistics to make it all work out smoothly. One of his innovations is the bluetooth earpiece. He even made a little house for it out of an old Altoids box and a kitchen sponge.