Loves, this is important.

Folks, read: THIS

Possible treatment for Edda.  Not a cure, but a promising treatment.  It’s also being studied for Fragile-X and traumatic brain injuries.  It’s an already approved drug primarily used to treat long term growth failure in children (IGF-1: insulin-like-growth-factor).  Rumors from Facebook indicate that the families who participated are excited about the results that they saw (improvements in hand use and attention span), but they aren’t allowed to talk about it.  Exciting!  And the study was done on older girls, not little, little ones who are prior regression.

Then maybe Edda can get a point or two on inane forms like this that I still have to fill out:


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