Edda went to the neurologist yesterday. I tried to turn it from an in-person appointment into a telehealth appointment, but no luck. I guess our neuro has days in the clinic and days working from home and the conversion between the two is not simple. We are at a dosing of 750 mg Keppra in the morning and 1000 mg of Keppra in the evening. We are going to keep it there, but if the seizures get worse, the neuro suggested either going on the keto diet or adding Topomax. The Topomax was not a med that the other Rett moms suggested, but we are open. Here’s Edda’s little seizure-tracking calendar.
Jeremy took her to the more local branch of Children’s hospital which is located less than 5 miles from our house.