Month: July 2006

As my mother implied in the previous entry, we did receive the results of Edda’s blood test on Monday and it is with a heavy heart that I report that she has Rett Syndrome.

Edda is very happy and healthy and does not seem to be in any physical or mental distress at this time and for that, I am grateful because I know these things are not a given for children with Rett. Actually, in the grand scheme of things, I still consider myself a fortunate person. I have loving family and friends, I have a roof over my head, plenty of food to eat and access to good schools for my kids and doctors for anyone who gets ill. It’s a good place to be. As for having Edda, she is 1 in 10,000 – she’s a pretty unique girl and if her soul had to end up anywhere in the world, it’s just fine that she landed into our little family. We’ll do our best to care for her, just like we all do our best to take care of each other each day.

We will see day by day what the future holds.

It is a very difficut to write at this moment since our family has to face the reality to raise an abnormal but lovely kid, especially for Doris and Jeremy. I have been hoping for the best and now we have to face the worst. It was kind of expected, but as I heared the news over the phone, it was very hard to hold back my tears and cried for a while. But crying does not solve problems, we have to face it. It was a pure bad luck, statistically speaking- 1 of 10,000 or 15,000.

After reading articles from the internet and judging from the current conditions- Edda has normal size of head and she can walk, it is not that bad. Hope she is on the better side and has mild forms.

But we are not alone. As a matter of fact, every family has to face some kind of challenges, big or small. Life can never be perfact. Lets face the challanges and you have all the supports from us.

Dad is leaving the day after tomorrow. We will be in office and are going to make up some time tomorrow. Take care of yourself first. Then you can take care of the rest. Love you all.

At Andrea’s Wedding

  

  

 
 
 
  

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We went hiking today in the rainforest. It wasn’t as humid or as mosquito-ridden as our trip to the marshland last week, but it was much more effort. Lots of uphill parts. We climbed a whole 500 ft to the highest point on Singapore. Jeremy and I parodied our first argument as a married couple. We were climbing a 14,000 ft mountain in Colorado on our honeymoon and about 4 hours into this hike that I didn’t really want to do because I had been a bit unwell (I was proceeding rather slowly), Jeremy offered some hiking suggestions which for some reason, I took really personally and I just sat down in the middle of the path and cried. It took us a few moments to recover from that argument and it has been smooth sailing ever since. Ha ha! Yah for hiking, it’s great to have a chance to do it again, I really enjoy it – just walking and looking at nature and the vast diversity of it all. Vince’ would have never agreed to hike this and Edda, well, we would have had to carry her most of the way. Although I did see other 2 and 4 year olds hiking with their parents.,.,

We had a lovely day. We basically we went shopping at the Tanglin Mall, the magnet for all expats in Singapore.

This is the highlight of our purchases:

Check out the new Birks too! Pretty cool huh?