On Wed, I went out with Lexy and Claudinna for lunch – it was veterans day and Lexy had a gift card for First Watch and it was fun. I had crunchy tacos. On Thursday, we went to CHOP to see Dr. Eric at the Rett Clinic. Usually, Jeremy makes the appointment for 11, but this time is was for 9:30 am which meant that we left the house at about 6:15 and got us into the appointment pretty much right on time. Edda’s doing well, they encouraged us to go on more walks with Edda to keep her walking skills up and more stretching which I had started and then kind of stopped when Edda’s seizures seemed to increase. We got a new seizure protocol – we usually do a benzo bridge which knocks her out for three days and they said…nononono, she’s supposed to be able to do her days like regular and we had no idea – I thought we were doing a hard reboot, but really, we are doing a soft reboot. I’m a little bit skeptical, but we’ll see. We also got a heads up on all the gene therapy and other clinical trials, it looks like things might come on the market next year! I kind of can’t believe it. I don’t think we’ll be an early adopter, but it’s very exciting nonetheless.
We also, after over a year of owning our electric car, finally charged it on-the-go. On the way home, we pulled into a rest stop, was able to charge the car without downloading an app and have it charge the battery in about 15-20 minutes while we were eating lunch. Very fun and not too frustrating. Also not frustrating because we knew we could probably make it home with 10% of the charge remaining.
Friday, I went to bookclub where we discussed Into the Wild which I used to find inspiring and now I just find sad. And then I went to a neighbor’s gathering down the street. I spent about an hour at each function and had a great time and was home by 8 pm. LOVE IT.