I was at the hospital all day Sat, all day Sunday and then because we had to do our 35ish combined parent hours at the fair and we don’t have much time this week, both Jeremy and I signed up to work from 8:30 am to 10 pm on Monday. Because Monday was short on parent volunteers, we ended up working a lot. 30 min in the sun, then 30 min to rest and then again and again omg. – usually, with enough parent staffing, they can manage a 30 min shift with an hour break. I was on my feet for three days straight and boy, by the time I was doing my last fair shift at 9:30pm, I was wiped out. I felt like I should have been able to sleep soundly on Monday night, but weird things are happening to my sleep. First, my inconsiderate dog, Maxi, woke us up at 3 am for no good reason except to want to go outside and eat some grass. And even if I wasn’t interrupted by Maxi, I feel like these days, even though my watch logs a steady 7 or 7.5 hours of sleep, my sleep is lighter somehow? I don’t get enough deep, satisfying, refreshing sleep anymore. Frustrating. Everyday, Jeremy and I both get up at 5:45 and the first thing that we say to each other is – did you sleep well? and often the answer is no.
Kuala sent a bunch of camp photos of Edda I wanted to share with you. Camp JCC is such a wonderful opportunity for Edda, it’ll be sad when she ages out. It was a very nice summer for these two.
We got a sleep safe bed delivered today for Edda. It’s a twin size bed that looks like furniture, but it has a motorized hospital bed mechanism under it that’ll lift up the head or lift up the feet and most importantly for us, it has safety rails that go around all the sides. We’ve been applying to insurance for it for a long time, I think this might have been our third go-around. I think I try each time we are up for a new wheelchair. Obviously, we’ve been denied twice before and I was not optimistic that we’d get it this time, but a few months ago, for whatever reason, it went through and here it is. Insurance is a mysterious beast. According to the invoice, this is a $16,404 bed. That is almost the cost of a Honda Civic. Oh, a Honda Civic is more like $18,000. But you could by a Honda Fit for the same $16,000.
Vince is at the fair all week. We got to experience a whole day with him on Monday. Edda was at home and went to her after-care camp in the afternoon (Celebrate Ability), Eliana has moved in for the week to look after her.
Jeremy and I managed to coordinate our breaks to coincide at the same time and we went into the fair for a quick dinner date. We might have even held hands, lol. I got my annual corn dog. Jeremy got his beloved turkey leg. We split a grilled cheese sandwich from The Big Cheese and topped it off with a shared chocolate dipped soft serve cone. I got to see my favorite rabbit exhibit, we saw the winning quilts and pies, and got to see some kids show some kids (goats) for judging.
Jeremy, bless his heart, went again tonight to bump our points up to finish off our obligate hours. He brought the kids some watermelon.